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Video and photos by Vivien Kakaan - VivienNaomi Photography

ReGISTRATION

Conference Fees

Consultant Fees

Early Bird-3 Days £350 / 1 day £145

Normal Rate- 3 days £430 / 1 day £170

Non-Consultants Fees

Early Bird- 3 days £299 / 1 day £125

Normal Rate- 3 days £355 / 1 day £150

Medical/Nursing Student Fees

Early Bird- 3 days £150 / 1 day £70

Normal Rate- 3 days £200 / 1 day £90

Sponsorship Queries

Email : StephanieLauren.Quirk@gstt.nhs.uk


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Abstracts

Abstract Submissions Open 1st March and Closes 15th August 2019.

The abstract submission process is your opportunity to help shape the content, to share your work with your peers and raise your professional profile.

2019 categories include:

Basic sciences-pathology and pathophysiology

Newborn screening; community engagement

Clinical and community implementation research

Public Health and Health Education

Psychology, education and quality of life

Ageing and haemoglobinopathies

Other aspects of haemaoglobinopathies


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Day 1 - 21st October

Recent updates

Dr David Rees: Overview of Sickle Cell Disease

Dr Paul Telfer: Overview Thalassaemia

Dr. Sebastian Lucas: Pathology in Haemoglobinopathies

Long-Term Outcomes

Dr Winfred Wang: USA Data

Dr Jennifer Knight-Madden: Jamaican Cohort

Dr Julie MakanI: Pan African Sickle Cell Project

Dr Antonis Khatamis: Long Term Survival in Thalassaemia

Hydroxyurea perspectives

Yemi Moses: Patient Experience

Dr Mariane de Montalembert: European Perspectives

Leon Tshilolo: REACH Trial

Dr Abdullahi Shehu: Hydroxyurea in Stroke Prevention for LMIC

Dr Russell Ware: Research and Practice - What’s on the Horizon

Educational Session

Dr Vijeya Ganesan: Neurosurgical Management in Sickle Cell Disease

Dr Wally Smith: Pain in SCD Phenotypes - a tip of the iceberg

Dr Ify Osunkwo: Transition from Paediatric to Adults for Haemoglobinopathies

Perspectives from patients

Patient Perspectives and Discussion

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Day 2 - 22nd October

Thalassaemia

Dr Ali Taher: How I Manage Medical Complications of β-thalassemia in Adults

Dr Maria Cappellini: Update on New Therapies

Dr Antonio Piga: Fertility in Thalassemia Men and Women

Dr John Porter: Severe overload in Thalassaemia – The Choice of Combination Therapy in Chelation.

Curative Therapies for Haemoglobinopathies

Dr Krishnamurti Lakshmanan: The Principle of Stem Cell Therapies in Haemoglobinopathies

Dr Julie Kanter: Gene Therapy in Sickle Cell Disease

Dr Alexis Thompson: Gene Therapy Trials in Thalassaemia

Dr Josu de la Fuente: Bone Marrow therapy in Paediatric Patient with Haemoglobinopathies

Chronic organ damage in Sickle Cell Disease

Elizabeth Klings – Pulmonary Hypertension, Cardiac Dysfunction and Venous Thromboembolism in SCD

Claire Sharpe - Renal Transplantation in Patients with Sickle Cell Disease

Dr Miguel Abboud: Stroke in SCD

Psychology session

Dr. Kofi Anie – Neuropsychological Screening in Sickle Cell Disease

Dr. Marsha Treadwell – Patient Reported Outcomes for a Cohort of Adolescents and Adults with Sickle Cell Disease

Jerlym Porter- Adherence to Hydroxyurea Therapy

Dr Lewis Hsu and Dr Andrea Lamont: Application of Implementation Science in Sickle Cell Disease

Global Priorities Perspectives in Haemoglobinopathies

Dr Kalpna Gupta and Dr Dipty Jain: India

Dr Biree Andemariam: USA

Dr. Beatrice Gulbis: Europe

Dr Isaac Odame: Africa

Dr Salwa Hindawi: Middle East

Day 3 - 23rd October

Research Update in haemoglobinopathies

Dr Ambroise Wonkam: Genomics of SCD and Novel Therapeutic Interventions

Dr Marina Kleanthous: Clinical Application of Non-Invasive Prenatal Determination of Fetal RHD in Maternal Plasma.

Dr Adekunle Adekile: The Spleen and Malaria in SCD

Dr Aurelio Maggio: Evidence for Three Distinct Classes of Phenotype Severity in Beta-Thalassemia

Plenary

Dr Jacques Elion: Capacity building in Haemoglobinopathies

Daniel Dos Santos: Haemoglobinopathy HPLC cases

Dr Perla Eleftherious: Thalassaemia Case Scenarios

Dr Rachel Kesse-Adu: Sickle Case Scenarios

Dr Vishal Jayakar: Red Cell Morphology

Comprehensive care for haemoglobinopathies

Dr Jo Howard: Adult Sickle Cell Disease

Dr Janet Kwiatkowski: Thalassaemia

Dr Eugene Oteng-Ntim: Pregnancy in Sickle Cell Disease

Dr Mohammed Cherif: Newborn Screening for SCD

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