Sickle Cell Disease - Pain and Common Chronic Complications

Edited by Baba Psalm Duniya Inusa, ISBN 978-953-51-2767-3, Print ISBN 978-953-51-2766-6, 280 pages,

Publisher: InTech, Chapters published November 10, 2016 under CC BY 3.0 license
DOI: 10.5772/62012
Edited Volume

This book addresses a wide range of clinically relevant topics and issues in sickle cell disease. This is written by experts in their own field offering a robust, engaging discussion about the presentations and mechanisms of actions in the multiple complications associated with sickle cell disease. This first of the series addresses pain, which is considered the hallmark of sickle cell presentation. It looks at the basic mechanism of pain in sickle cell disease. A more detailed review of precision medicine gives a clear well laid out presentation that is incisive and yet gives in-depth detail relevant to both the clinician and the researcher in the basic laboratory. The same pattern is shown in the discussion on respiratory, cardiac and neurological complications. The 14 chapters also include an overview of sickle cell disease especially in the paediatric age.

The content is organized into well-designed broad sections on overview regarding diagnosis including point of care and the role of digital apps in patient management. A key aspect of the book is the opportunity it affords expert physicians to express well-reasoned opinions regarding complex issues in sickle cell disease. The readership would find that it provides a well-described, concise and immediate applicable answers to complex questions. This is highly recommended for scientists and clinicians alike.

 

10th Annual Sickle Cell and Thalassaemia Conference (ASCAT) in London UK, 5th -7th October 2016

Speakers and Presentations

Click to each title to download presentations by guest speakers.

Alexis Thompson - American Society for Hematology

Ali TaherEvidence-Based Approach to Managing Non-Transfusion-Dependent Thalassemias (NTDT)

Barnaby Clark - Haemoglobinopathy diagnosis

Caterina Minniti - Chronic Organ Damage in Sickle Cell Anaemia

Claire Sharpe - Renal complications

Dagan Wells - New technique of karyomapping for PGD

David Roberts - Thousands of genetic variants

Deepika Darbari - Deconstructing Pain in Sickle Cell Disease

Elizabeth Klings - Pulmonary HTN

Emma Drasar - Thalassaemia case scenarios

Greg Kato - Augmenting Nitric Oxide Signaling in SCD

Jerlym Porter - Transition skills training

Jo Howard - Haemoglobin modifiers

Jo Howard - NICE guidance on spectra optiav2

Kalpna Gupta - Promising strategies to treat pain in sickle cell disease

Ken Ataga - Endothelial Dysfunction and Albuminuria in Sickle Cell Disease

Léon Tshilolo - National Development of SCD Programmes in Congo DR

Marsha Treadwell - Patient Reported Outcomes for the Hemoglobinopathies

Matt Heeney - Anti-adhesion agents

Service to Humanity Foundation

Simon Robertson - Virtual reality as a complementary therapy

Stephan Lobitz - Emerging haemoglobinopathies services

 

 

Standards for the Clinical Care of Children and Adults with Thalassaemia in the UK

The 3rd edition (May 2016) of the Standards for the Clinical Care of Children and Adults with Thalassaemia in the UK is available now.

 

Excellence in Oncology and Haematology Nursing

 

Published on 17 Dec 2015

Brought to you in association with Novartis Oncology.

The video is centered around the work of Luhanga Musumadi, an advanced nurse practitioner for sickle cell at Guy’s and St Thomas’ hospital (which includes the Evelina Children’s Hospital). He explains how he has set up and managed the transition service for young people with sickle cell and thalassaemia, supporting and preparing them for their move from the children’s environment into the adult services.